A Year with CMT Day 16

Charcot Marie ToothNeuropathy and Cold
Written By Lenka Vodicka

40.3° Changing the title.  I'm curious about the cold, but there is a lot more to this experience.  For many years, CMT was an subplot, a below the surface story.  And in many ways, it remains like that.  But my story is changing.  And sharing it here may help me.  It may help others contending with this disorder.  So . . . ever onward.

Today was tough.  Ian came to school.  My feet are angry, flaring angry.  Ian didn't sleep well last night.  I'm done for today.

Lenka Vodicka

I am a photographer, writer, and crafter in the Sierra foothills. I am the bestselling author of the Forest Fairy Crafts books. I am a recent breast cancer survivor and I manage hereditary neuropathy (Charcot Marie Tooth or CMT). I live with my two teens, a black cat, two kittens, a bunny, and a furry little dog named Chewbacca. I enjoy adventures, creativity, and magic.

http://lenkaland.com
Previous

A Year with CMT Day 17
Next

School Day with Ian