Parting Thoughts for CMT Awareness Week

Charcot Marie ToothDisability CommunityHereditary NeuropathyLife
Written By Lenka Vodicka

One last idea as I read lots of CMT stories this week.  My expereince with CMT changes dramatically depending on my life.  After a day like today (see A Usual Monday), CMT is overwhelming.  On days when I can make choices around my challenges, the CMT is very manageable.  If I were not working, did not have young children at home, and could pace my day consciously, I would have very different symptoms with CMT. I know this because I see the differences between the school year and summer-time.  When the kids are independent or needy.  I feel very different.  Stress.  Schedules.  These things make everything more difficult.

Then again, we cannot put life on hold to cater to our potential challenges.  Like Michele said, "If I want to dance, I'll dance.  I'll deal with the consequences tomorrow."

I love teaching.  I love my kids.  I wouldn't trade them for a thousand good days.

So it's all about balance.  And supporting one another when life gets busy.  Remembering the whole.  Instead of living in one corner of our lives.  Be everything :)

Lenka Vodicka

I am a photographer, writer, and crafter in the Sierra foothills. I am the bestselling author of the Forest Fairy Crafts books. I am a recent breast cancer survivor and I manage hereditary neuropathy (Charcot Marie Tooth or CMT). I live with my two teens, a black cat, two kittens, a bunny, and a furry little dog named Chewbacca. I enjoy adventures, creativity, and magic.

http://lenkaland.com
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